UPSI Digital Repository (UDRep)
|Abstract : Universiti Pendidikan Sultan Idris|
|Heart failure (HF) prevalence is increasing in Malaysia and brings about significant poor outcomes specially on the patients’ wellbeing. Despite the devastating physical symptoms of HF experienced by patients, other social consequences on patients are often not discussed by their health care professionals. Hence, this qualitative study aims to explore and understand the quality of life (QOL) for patients in Malaysia of various ethnicity who have been diagnosed with heart failure. Methods: Nineteen (n = 19) patients with recurrent HF were recruited via purposive sampling. One-to-one semi-structured interviews were conducted after patients’ informed consent was obtained. The aforementioned sessions were audio-recorded and transcribed verbatim. Finally, the transcribed data was analysed through Braun and Clarke’s framework for thematic analysis. Results: The findings revealed that Malaysians with HF reported either positive or negative experiences related with QOL which had an effect on their well-being. Four main themes emerged included physical, psychological, social, and spirituality. Interestingly, cultural and beliefs consideration were important to understand these QOL themes of HF patients as a whole, especially in Malaysia’s multi-ethnic communities. Conclusion: Informants were able to give vivid descriptions of living with HF experiences and the way it affected their QOL due to the disruptive and uncertain nature of HF in four major themes. However, the individual themes of QOL in HF patients need to be comprehended in detail including the local cultural perspectives, particularly by health professionals who deal with HF patients of minority ethnicities, in order to improve treatment and health outcomes.|
1. Prabhakaran D, Jeemon P, Sharma M, Roth G, Johnson C, Harikrishnan S, et al. The changing patterns of cardiovascular diseases and their risk factors in the states of India: The global burden of disease study 1990–2016. The Lancet Global Health. 2018;6(12):e1339-e1351. doi:10.1016/s2214-109x(18)30407-8.
2. Savarese G, & Lund L. Global Public Health Burden of Heart Failure. Cardiac Failure Review. 2017;03(01):7. doi:10.15420/cfr.2016:25:2
3. Lam SP. Heart failure in Southeast Asia: facts and numbers. ESC Heart Fail. 2015;2(2):46-49.
4. Teh BT, Lim MN, Robiah A, et al. Heart failure hospitalizations in Malaysia. J Card Fail. 1999;5(3):64.
5. Chong AY, Rajaratnam R, Hussein NR, Lip GYH. Heart failure in multi-ethnic population in Kuala Lumpur, Malaysia. Eur J Heart Fail. 2003;5(4):569-574.
6. Ministry of Health Malaysia. Clinical practice guidelines management of heart failure. http://www. moh.gov.my/penerbitan/CPG/Management%20 of%20%20Heart%20Failure%202nd%20%20 Edition.pdf. Accessed July 13, 2018.
7. Adebayo SO, Olunuga TO, Durodola A,Ogah OS. Quality of life in heart failure: a review. Nig J Cardiol. 2017;14(1):1-8.
8. Poorshadan, S., Fallahi, M., Abdi, A., Mahdavikian, S., Miri, J. and Azami, H. Quality of Life and its Predictors in Hospitalized Patients with Heart Failure at Hospitals Affiliated to KermanshahIran University of Medical Sciences. J Cardiovasc Disease Res. 2019;10(1):16-19.
9. Farmakis, D., Stafylas, P., Giamouzis, G., Maniadakis, N. and Parissis, J. The medical and socioeconomic burden of heart failure: A comparative delineation with cancer. International Journal of Cardiology. 2016; 203:279-281.
10. Seah, A., Tan, K., Huang Gan, J. and Wang, W. Experiences of Patients Living With Heart Failure. Journal of Transcultural Nursing. 2015; 27(4):392-399.
11. Whitehead L, Jacob E, Towell A, Abu-qamar M, Cole-Heath A. The role of the family in supporting the self-management of chronic conditions: A qualitative systematic review. Journal of Clinical Nursing. 2017;27(1-2):22-30. doi:10.1111/jocn.13775
12. Freund T, Wensing M, Mahler C, et al. Development of a primary care-based complex care management intervention for chronically ill patients at high risk for hospitalization: a study protocol. Implement Sci. 2010;5:70.
13. Lee WL, Abdullah KL, Bulgiba AM, Abidin IZ. Prevalence and predictors of patient adherence to health recommendations after acute coronary syndrome: data for targeted interventions? European Journal of Cardiovascular Nursing. 2013:12(6):512-20. doi:10.1177/1474515112470056.
14. Ming LC, Hassali MA, Shafie AA, Awaisu A, Hadi MA, Al-Haddad M. Perspectives of heart failure patients in Malaysia towards medication and disease state management: findings from a qualitative study. J Public Health. 2011;19(6):569-577.
15. Walthall, H., Jenkinson, C. and Boulton, M. Living with breathlessness in chronic heart failure: a qualitative study. Journal of Clinical Nursing, 2017:26(13-14):2036-2044.
16. Sun XG. Rehabilitation practice patterns for patients with heart failure: The Asian perspective. Heart Fail. Clin. 2015: 11: 95–104. doi: 10.1016/j. hfc.2014.09.001.
17. Choo, C., Chew, P., Lai, S., Soo, S., Ho, C., Ho, R. and Wong, R. Effect Of Cardiac Rehabilitation On Quality Of Life, Depression And Anxiety In Asian Patients. InternationalJournal of Environmental Research and Public Health. 2018:15(6):1095. doi:10.3390/ijerph15061095
18. Willig C. Introducing qualitative research in psychology. UK: McGraw-Hill International: 2013.
19. Smith, J.A. (2nd Ed.).Qualitative psychology: A practical guide to research methods. Sage Publication; 2015.
20. Miles, M. B., & Huberman, A. M. Qualitative data analysis: An expanded sourcebook, 2nd ed. Thousand Oaks, CA, US: Sage Publications, Inc; 1994.
21. Moser A, Korstjens I. Series: Practical guidance to qualitative research. Part 3: Sampling, data collection and analysis. European Journal of General Practice.2018:24(1): 9-18. doi:10.1080/1 3814788.2017.1375091.
22. Rector TS, Cohn JN. Minnesota living with heart failure questionnaire. Minnesota, MN:University of Minnesota; 2004.
23. Ming L, Hassali M, Shafie A, Awaisu A, Hadi M, Al-Haddad M. Perspectives of heartfailure patients in Malaysia towards medications and disease state management: findings from a qualitative study. Journal of Public Health, 2011:19(6): 569-577. doi:10.1007/s10389-011-0415-5.
24. Brocki JM, Wearden AJ. A critical evaluation of the use of Interpretative Phenomenological Analysis (IPA) in Health Psychology. Psychol and Health. 2006;21(1):87-108.
25. Barbour, R. S. (2001). Checklists for improving rigour in qualitative research: a case of the tail wagging the dog? Bmj, 322(7294), 1115–1117.
26. Creswell, J. W. (2014). A concise introduction to mixed methods research. Sage Publications.
27. Ministry of Health. Clinical practice guidelines – cardiovascular. Ministry of Health. 2007 [cited 2019 February 06] Retrieved from http://www. moh.gov.my/index.php/pages/view/133.
28. Smith JA, Flowers P, Larkin M. Interpretative phenomenological analysis: theory, method and research. UK: Sage: 2009.
29. Merriam SB. Qualitative research: a guide to design and implementation. New Jersey, NJ: John Wiley and Sons; 2015.
30. Braun V, Clarke V, Terry G, Rohleder P, Lyons A. Thematic Analysis. In: Qualitative Research in Clinical and Health Psychology. Basingstoke: Palgrave Macmillan; 2014:95.
31. Jeon YH, Kraus SG, Jowser T, Glasgow NJ. The experience of living with chronic heart failure: a narrative review of qualitative studies [published online March 24, 2010]. BMC Health Serv Res. doi: 10.1186/1472-6963-10-77.
32. Sokoreli I, de Vries J, Pauws S, Steyerberg E. Depression and anxiety as predictors of mortality among heart failure patients: systematic review and meta-analysis. Heart Failure Reviews. 2015;21(1):49-63. doi:10.1007/s10741-015-9517-4
33. Parikh K, Coles A, Schulte P, Kraus W, Fleg J, Keteyian S, et al. Relation of Angina Pectoris to Outcomes, Quality of Life, and Response to Exercise Training in Patients With Chronic Heart Failure (from HF-ACTION). The American Journal of Cardiology. 2016;118(8):211-1216. doi:10.1016/j.amjcard.2016.07.040
34. Mohamed NF, Azan A, Peterson RF, Alwi MN, Shaharom MH. Mental and physical health comparison among psychologically distressed heart failure patients in Malaysia. Procedia Soc Behav Sci. 2014;127:412-416.
35. Asano R, Mathai S, Macdonald P, Newton P, Currow D, Phillips J, et al. Oxygen use in chronic heart failure to relieve breathlessness: A systematic review. Heart Failure Reviews. 2019. doi:10.1007/ s10741-019-09814-0.
36. Boyde M, Peters R, New N, Hwang R, Ha T, Korczyk D. Self-care educational intervention to reduce hospitalisations in heart failure: A randomised controlled trial. European Journal of Cardiovascular Nursing. 2017;17(2):178-185. doi:10.1177/1474515117727740
37. Netto G, Bhopal R, Lederle N, Khatoon J, Jackson A. How can health promotion interventions be adapted for minority ethnic communities? Five principles for guiding the development of behavioural intentions. Health Promo Int. 2010;25(2):248-257.
38. Yasin S, Chan CKY, Reidpath DD, Allotey P. Contextualizing chronicity: a perspective from Malaysia. Global Health. 2012;8:4.
39. Ridder D, Geenen R, Kuijer, R, van Middendorp H. Psychological adjustment to chronic disease. Lancet. 2008;372(9634):246-255.
40. Nicholas Dionne-Odom J, Hooker S, Bekelman D, Ejem D, McGhan G, Kitko L, et al. Family caregiving for persons with heart failure at the intersection of heart failure and palliative care: a state-of-the-science review. Heart Failure Reviews. 2017;22(5):543-557. doi:10.1007/s10741-017-9597-4.
41. Mohamed NF, Azan A, Lebar O, Shaharom MH, Peterson RF. Family support, positive thinking and spirituality correlates on psychologically distressed heart failure patients. Procedia Soc Behav Sci. 2014;127:484-488.
42. Hammash MH, Crawford T, Shawler C, Schrader M, Lin CY, Shewekah D, Moser DK. Beyond social support: Self-care confidence is key for adherence in patients with heart failure. European Journal of Cardiovascular Nursing. 2017;16(7):632-637. doi:10.1177/1474515117705939.
43. Pattenden JF, Roberts H, Lewin RJP. Living with heart failure: patient and carer perspectives. Eur J Cardiovasc Nurs. 2007;6(4):273-279.
44. Philippou, K., Lambrinou, E., Ktisti, S., Kyriakou, M. and Middleton, N. (2019). Social support and adherence to the therapy in patients with heart failure: a systematic review. Wiley-Blackwell.
45. Durante, A., Greco, A., Annoni, A., Steca, P., Alvaro, R. and Vellone, E. Determinants of caregiver burden in heart failure: does caregiver contribution to heart failure patient self-care increase caregiver burden?. European Journal of Cardiovascular Nursing, 2019; https://doi. org/10.1177%2F1474515119863173.
46. Greaves, C., Wingham, J., Deighan, C., Doherty, P., Elliott, J., Armitage, W., Clark, M., Austin, J., Abraham, C., Frost, J., Singh, S., Jolly, K., Paul, K., Taylor, L., Buckingham, S., Davis, R., Dalal, H. and Taylor, R. Optimising self-care support for people with heart failure and their caregivers: development of the Rehabilitation Enablement in Chronic Heart Failure (REACH-HF) intervention using intervention mapping. Pilot and Feasibility Studies, 2016: 2(1). https://doi.org/10.1186/ s40814-016-0075-x.
47. Jors K, Büssing A, Hvidt NC, Baumann K. Personal prayer in patients dealing with chronic illness: a review of the research literature. Evid Based Complement Alternat Med. 2015 :927-973.
48. Abu, H., McManus, D., Lessard, D., Kiefe, C.and Goldberg, R. (2019). Religious practices and changes in health-related quality of life after hospital discharge for an acute coronary syndrome. Health and Quality of Life Outcomes. 2019; 17(1).
49. Singh, K., Junnarkar, M., Singh, D. et al. J Relig Health. 2019. https://doi.org/10.1007/s10943- 019-00877-9
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